Advice

Parkinson’s UK Central Services

This is the current advice on Coronavirus from Parkinson’s UK

The full range of information available online and as brochures and leaflets by mail can be found at :
Parkinson's UK Information and Support
or call the Parkinson's UK Helpline
Call FREE on 0808 800 0303 or see below.
Opening times: Monday-Friday: 9am-7pm, Saturday: 10am-2pm
(Closed Sundays and Bank Holidays) BUT subject to Coronavirus restrictions.

To contact us (Parkinson’s UK) :

  • Email: hello@parkinsons.org.uk.
  • Send your question: general enquiry form.
  • NGT Relay: 18001 0808 800 0303 (for use with smart phones, tablets, PCs and other devices. For more information see www.ngts.org.uk).
  • Write to us: Helpline, Parkinson’s UK, 215 Vauxhall Bridge Road, London SW1V 1EJ.

Parkinson’s UK Regional Services

Network Support Officer
Mary Jane Hunter0344 225 3695mjhunter@parkinsons.org.uk

NHS Services – Parkinson’s Nurses

The Parkinson’s Nursing Service in Cornwall provides specialised care and ongoing support for you after a diagnosis of Parkinson’s Disease, and is one of a range of services for those facing the complications of long-term neurological conditions. These services are accessed by referral from your GP.

In the current circumstances the Parkinson’s Nurses are responding to phone calls to the service (01209 318048) on a daily basis. They are reviewing all new patients and follow up patients via phone, and encouraging service users to email the service as well ( pdnurses.cornwall@nhs.net ).

You should follow the NHS guidelines to call 111 if you are so unwell you are unable to carry out your daily activities, or call 999 in an emergency.

The Cornwall NHS Trust is responsible for providing the service throughout Corrnwall, except for those on the Home Care Pathway, which is the responsibility of the Parkinson’s Service at Derriford Hospital

Local Volunteer Services: The Cornwall Branches of Parkinson’s UK

Mid Cornwall Branch
ChairmanJan Wilder01726 61502chairman@parkinsonscornwalll.com
Vice ChairmanVacancy
SecretarySue Whipps01503 262166secretary@parkinsonscornwall.com
TreasurerNick Wilder 01726 61502treasurer@parkinsonscornwall.com
Membership SecretarySue Whipps01503 262166membership@parkinsonscornwall.com
Newsletter Editor 01726 61502newsletter@parkinsonscornwall.com
West Cornwall and Isles of Scilly Branch
ChairmanEdward Bolitho07980 826613
Vice ChairmanHelen Hichens01736 788309
SecretaryLinda Ashmore01736 711293secretarywest@parkinsonscornwall.com
Membership Secretary(As for Mid Cornwall)
TreasurerRob Burt01326 221330

Local Independent Groups

The links below are to groups independent of the local Parkinson’s UK Branches that also focus on support for all those affected who live in Cornwall and Devon.

Living Well With Parkinson’s

People with Parkinson’s in Cornwall Facebook group

Partners of People with Parkinson’s Facebook group 

Get involved in Research into Parkinson’s

The opportunities range from straightforward  questionnaires to participation in sophisticated drug trials. There is so much going on now that all People with Parkinson’s and all care partners can contribute to the process of getting better treatments.

PenPRIG, the Peninsula Parkinson’s Research Interest Group, is especially interested in opportunities in Cornwall and Devon. We have a talented and committed Parkinson’s research community in the southwest that deserves your support to their research studies.

We are confident that these groups are reputable sources of support and information but we are not responsible for their activities or the accuracy of information provided.