Advice

Parkinson’s UK Central Services

Whether newly diagnosed or experienced in Parkinson’s, and whether we like it or not, advice is necessary.   Good advice starts with reliable information.  The internet offers a vast amount of information on Parkinson’s, but not all you see is reliable.  A central part of Parkinson’s UK’s purpose is to provide reliable information. These are entry points for the main topics: –

Newly diagnosed with Parkinson’s?
Living with Parkinson’s?
Caring for someone with Parkinson’s?

The full range of information available online and as brochures and leaflets by mail can be found at  Parkinson’s UK Information and Support, or call the
Parkinson’s UK Helpline
Call FREE on 0808 800 0303
Opening times: Monday-Friday: 9am-7pm, Saturday: 10am-2pm
(Closed Sundays and Bank Holidays)

Parkinson’s UK Regional Services

Local Parkinson’s Advisers
Parkinson’s local advisers can help you whether you have the condition or you’re a carer, friend or family member. Their confidential service covers the full range of support services, including your rights and entitlements, help navigating the benefits process, where to find grants and financial help, and dealing with employment issues.

Bude, Launceston, Callington, Saltash, Torpoint & Rame, Plymouth & W. Devon: –
Call Kay Lillie 0344 225 9839 klillie@parkinsons.org.uk
The rest of Cornwall and Isles of Scilly: –
Call Jo Sampson 0344 225 9824  jsampson@parkinsons.org.uk
Network Support Officer
Call Mary Jane Hunter 0344 225 3695 mjhunter@parkinsons.org.uk

NHS Services

To turn the information into advice that applies to your own circumstances always consult with your doctor or a health professional.

The NHS Kernow Clinical Commissioning Group NHS Kernow Clinical Commissioning Group are responsible for a range of services for those facing the complications of long-term neurological conditions. These services are accessed through your GP.

The Cornwall Partnership NHS Foundation Trust provides the  Parkinson’s Nursing Service for ongoing support for you after a diagnosis of Parkinson’s Disease.  To access the Nursing Service call 01209 318048 (NOTE: this number is not shown on the link page). You will hear about the service being given and be able to leave a message.

During the current Coronavirus crisis the Parkinson’s nurses are responding to phone calls to the service on a daily basis. They are reviewing all new patients and follow up patients via phone, and encouraging service users to email the service as well. For Appointment changes only call 01209 318050.

We are working with the local NHS organisations responsible for Parkinson’s health services to improve the availability and accuracy of online information.

Cornwall Branches of Parkinson’s UK

Mid Cornwall Branch
Chairman Bob Williams 01841 533135 chairman@parkinsonscornwall.com
Vice-Chairman Jan Wilder
Secretary Nick Wilder 01726 940495 secretary@parkinsonscornwall.com
Membership Secretary John Whipps 01503 262166 membership@parkinsonscornwall.com
Treasurer Chris Maycock 01208 420432 treasurer@parkinsonscornwall.com
West Cornwall and Isles of Scilly
Chairman Edward Bolitho
Vice Chairman Helen Hichens
Secretary Linda Timms 01736 711293 secretarywest@parkinsonscornwall.com
Treasurer Rob Burt
Membership Secretary John Whipps (as above).

Local Independent Groups

The links below are to groups which are independent of the Cornwall Branches of Parkinson’s UK.  Although we are confident they can be a good source of further support, we are not responsible for their content or the accuracy of information provided.

People with Parkinson’s in Cornwall Facebook group

Partners of People with Parkinson’s Facebook group 

Research Interest and Involvement

Although our primary purpose is to support the Parkinson’s community, both Branches actively support the research effort.  Looking across the two counties, both the University Hospitals  and the Royal Cornwall Hospitals Foundation NHS Trusts are active in Parkinson’s research projects, as are the University of Plymouth and Marjohn University.

The Peninsula Parkinson’s Research Interest Group (PenPRIG) is an initiative to encourage the development of local research work and attract the Parkinson’s community to involve yourselves in research.