Advice

Whether you are newly diagnosed or experienced in Parkinson’s, it can’t be ignored. Good ongoing advice is necessary, and this starts with reliable information.  The internet offers a vast amount of information on Parkinson’s, but not all you see is reliable.

Parkinson’s UK Central Services

A central part of Parkinson’s UK’s purpose is to provide reliable information. These are entry points for the main topics: –
Newly diagnosed with Parkinson’s?
Living with Parkinson’s?
Caring for someone with Parkinson’s?

The full range of information available online and as brochures and leaflets by mail can be found at :
Parkinson's UK Information and Support
or call the Parkinson's UK Helpline
Call FREE on 0808 800 0303
Opening times: Monday-Friday: 9am-7pm, Saturday: 10am-2pm
(Closed Sundays and Bank Holidays)

Parkinson’s UK Regional Services

Parkinson’s UK can help you locally whether you have the condition or you’re a carer, friend or family member. The confidential service covers the full range of support services, including your rights and entitlements, help navigating the benefits process, where to find grants and financial help, and dealing with employment issues.

Network Support Officer
Mary Jane Hunter0344 225 3695mjhunter@parkinsons.org.uk
Local Adviser
Jo Sampson0344 225 9824jsampson@parkinsons.org.uk

NHS Services

Parkinson’s Nurses

During the Coronavirus crisis the Parkinson’s nurses in Cornwall are responding to phone calls to the service (01209 318048) on a daily basis. They are reviewing all new patients and follow up patients via phone, and encouraging service users to email the service as well ( pdnurses.cornwall@nhs.net ).

You should follow the NHS guidelines to call 111 if you are so unwell you are unable to carry out your daily activities, or call 999 in an emergency.

Cornwall Council contacts:
covid19@cornwall.gov.uk
Adult Social Services 0300 123 4131

The Parkinson’s Nursing Service in Cornwall provides specialised care and ongoing support for you after a diagnosis of Parkinson’s Disease, and is one of a range of services for those facing the complications of long-term neurological conditions. These services are accessed by referral from your GP.

For the Parkinson’s Nursing Service call 01209 318048. You will hear about the service being given and be able to leave a message. Alternatively email pdnurses.cornwall@nhs.net .

Service Provision and Management

The services are defined and procured by the NHS Kernow Commissioning Group .  The Cornwall NHS Trust is responsible for providing the service throughout Corrnwall, except in the East Cornwall locality, where it is the responsibility of the Parkinson’s Service at Derriford Hospital

The East Cornwall locality includes the Surgeries at the bottom of this linked page, and those involved in the Home-based Care Project.

Local Volunteer Services: The Cornwall Branches of Parkinson’s UK

Mid Cornwall Branch
ChairmanVacancy
Vice ChairmanJan Wilder01726 940495
SecretaryNick Wilder01726 940495secretary@parkinsonscornwall.com
Membership SecretaryJohn Whipps01503 262166membership@parkinsonscornwall.com
TreasurerChris Maycock01208 420432treasurer@parkinsonscornwall.com
West Cornwall and Isles of Scilly Branch
ChairmanEdward Bolitho
Vice ChairmanHelen Hichens
SecretaryLinda Timms01736 711293secretarywest@parkinsonscornwall.com
Membership SecretaryJohn Whipps01503 262166membership@parkinsonscornwall.com
TreasurerRob Burt

Local Independent Groups

The links below are to groups which are independent of the Cornwall Branches of Parkinson’s UK.  Although we are confident they can be a good source of further support, we are not responsible for their content or the accuracy of information provided.

People with Parkinson’s in Cornwall Facebook group

Partners of People with Parkinson’s Facebook group 

Research Interest and Involvement

Although our primary purpose is to support the Parkinson’s community, both Branches actively support the research effort.  Looking across the two counties, both the University Hospitals  and the Royal Cornwall Hospitals Foundation NHS Trusts are active in Parkinson’s research projects, as are the University of Plymouth and Marjohn University.

The Peninsula Parkinson’s Research Interest Group (PenPRIG) is an initiative to encourage the development of local research work and attract the Parkinson’s community to involve yourselves in research.