Parkinson’s UK Central Services
A central purpose of Parkinson’s UK is to provide reliable information, whether you:
- have just been diagnosed and are looking for advice and information.
- are looking for tips on how to deal with the day-to-day impact of Parkinson’s.
- want to learn about your rights and entitlements.
- need help navigating the benefits process.
- need information on where to find grants and financial help.
- are looking for support on employment issues.
| The full range of information available online and as brochures and leaflets by mail can be found at : |
| Parkinson's UK Information and Support |
| or call the Parkinson's UK Helpline |
| Call FREE on 0808 800 0303 or see below. |
| Opening times: Monday-Friday: 9am-7pm, Saturday: 10am-2pm (Closed Sundays and Bank Holidays) BUT subject to Coronavirus restrictions. |
To contact us:
- Email: hello@parkinsons.org.uk.
- Send your question: general enquiry form.
- NGT Relay: 18001 0808 800 0303 (for use with smart phones, tablets, PCs and other devices. For more information see www.ngts.org.uk)..
- Write to us: Helpline, Parkinson’s UK, 215 Vauxhall Bridge Road, London SW1V 1EJ
Parkinson’s UK Regional Services
| Network Support Officer | ||
| Mary Jane Hunter | 0344 225 3695 | mjhunter@parkinsons.org.uk |
NHS Services – Parkinson’s Nurses
The Parkinson’s Nursing Service in Cornwall provides specialised care and ongoing support for you after a diagnosis of Parkinson’s Disease, and is one of a range of services for those facing the complications of long-term neurological conditions. These services are accessed by referral from your GP.
In the current circumstances the Parkinson’s Nurses are responding to phone calls to the service (01209 318048) on a daily basis. They are reviewing all new patients and follow up patients via phone, and encouraging service users to email the service as well ( pdnurses.cornwall@nhs.net ).
You should follow the NHS guidelines to call 111 if you are so unwell you are unable to carry out your daily activities, or call 999 in an emergency.
The Cornwall NHS Trust is responsible for providing the service throughout Corrnwall, except in the East Cornwall locality, where it is the responsibility of the Parkinson’s Service at Derriford Hospital.
The East Cornwall locality includes the Surgeries at the bottom of this linked page, and those involved in the Home-based Care Project.
Local Volunteer Services: The Cornwall Branches of Parkinson’s UK
| Mid Cornwall Branch | |||
| Chairman | Jan Wilder | chairman@parkinsonscornwalll.com | |
| Vice Chairman | Vacancy | ` | |
| Secretary | Sue Whipps | 01503 262166 | secretary@parkinsonscornwall.com |
| Treasurer | Nick Wilder | 01726 61502 | treasurer@parkinsonscornwall.com |
| Membership Secretary | Kay Maycock | 01208 420432 | membership@parkinsonscornwall.com |
| Newsletter Editor | Kay Maycock | 01208 420432 | newsletter@parkinsonscornwall.com |
| West Cornwall and Isles of Scilly Branch | |||
| Chairman | Edward Bolitho | 07980 826613 | |
| Vice Chairman | Helen Hichens | 01736 788309 | |
| Secretary | Linda Ashmore | 01736 711293 | secretarywest@parkinsonscornwall.com |
| Membership Secretary | (As for Mid Cornwall) | ||
| Treasurer | Rob Burt | 01326 221320 | |
Local Independent Groups
The links below are to groups which are independent of the Cornwall Branches of Parkinson’s UK. Although we are confident they can be a good source of further support, we are not responsible for their content or the accuracy of information provided.
People with Parkinson’s in Cornwall Facebook group
Partners of People with Parkinson’s Facebook group
Research Interest and Involvement
The Peninsula Parkinson’s Research Interest Group (PenPRIG) is an initiative to encourage the development of local research work and attract the Parkinson’s community to involve yourselves in research.
Although our primary purpose is to support the Parkinson’s community, both Branches actively support the research effort. Looking across the two counties, both the University Hospitals and the Royal Cornwall Hospitals Foundation NHS Trusts are active in Parkinson’s research projects, as are the University of Plymouth and Marjohn University.
