Whether you are newly diagnosed or experienced in Parkinson’s, it can’t be ignored. Good ongoing advice is necessary, and this starts with reliable information. The internet offers a vast amount of information on Parkinson’s, but not all you see is reliable.
Parkinson’s UK Central Services
A central part of Parkinson’s UK’s purpose is to provide reliable information. These are entry points for the main topics: –
Newly diagnosed with Parkinson’s?
Living with Parkinson’s?
Caring for someone with Parkinson’s?
| The full range of information available online and as brochures and leaflets by mail can be found at : |
| Parkinson's UK Information and Support |
| or call the Parkinson's UK Helpline |
| Call FREE on 0808 800 0303 |
| Opening times: Monday-Friday: 9am-7pm, Saturday: 10am-2pm (Closed Sundays and Bank Holidays) |
Parkinson’s UK Regional Services
Parkinson’s UK can help you locally whether you have the condition or you’re a carer, friend or family member. The confidential service covers the full range of support services, including your rights and entitlements, help navigating the benefits process, where to find grants and financial help, and dealing with employment issues.
| Network Support Officer | ||
| Mary Jane Hunter | 0344 225 3695 | mjhunter@parkinsons.org.uk |
| Local Adviser | ||
| Jo Sampson | 0344 225 9824 | jsampson@parkinsons.org.uk |
NHS Services
Parkinson’s Nurses
During the Coronavirus crisis the Parkinson’s nurses in Cornwall are responding to phone calls to the service (01209 318048) on a daily basis. They are reviewing all new patients and follow up patients via phone, and encouraging service users to email the service as well ( pdnurses.cornwall@nhs.net ).
You should follow the NHS guidelines to call 111 if you are so unwell you are unable to carry out your daily activities, or call 999 in an emergency.
Cornwall Council contacts:
covid19@cornwall.gov.uk
Adult Social Services 0300 123 4131
The Parkinson’s Nursing Service in Cornwall provides specialised care and ongoing support for you after a diagnosis of Parkinson’s Disease, and is one of a range of services for those facing the complications of long-term neurological conditions. These services are accessed by referral from your GP.
For the Parkinson’s Nursing Service call 01209 318048. You will hear about the service being given and be able to leave a message. Alternatively email pdnurses.cornwall@nhs.net .
Service Provision and Management
The services are defined and procured by the NHS Kernow Commissioning Group . The Cornwall NHS Trust is responsible for providing the service throughout Corrnwall, except in the East Cornwall locality, where it is the responsibility of the Parkinson’s Service at Derriford Hospital.
The East Cornwall locality includes the Surgeries at the bottom of this linked page, and those involved in the Home-based Care Project.
Local Volunteer Services: The Cornwall Branches of Parkinson’s UK
| Mid Cornwall Branch | |||
| Chairman | Vacancy | ||
| Vice Chairman | Jan Wilder | 01726 940495 | |
| Secretary | Nick Wilder | 01726 940495 | secretary@parkinsonscornwall.com |
| Membership Secretary | John Whipps | 01503 262166 | membership@parkinsonscornwall.com |
| Treasurer | Chris Maycock | 01208 420432 | treasurer@parkinsonscornwall.com |
| West Cornwall and Isles of Scilly Branch | |||
| Chairman | Edward Bolitho | ||
| Vice Chairman | Helen Hichens | ||
| Secretary | Linda Timms | 01736 711293 | secretarywest@parkinsonscornwall.com |
| Membership Secretary | John Whipps | 01503 262166 | membership@parkinsonscornwall.com |
| Treasurer | Rob Burt | ||
Local Independent Groups
The links below are to groups which are independent of the Cornwall Branches of Parkinson’s UK. Although we are confident they can be a good source of further support, we are not responsible for their content or the accuracy of information provided.
People with Parkinson’s in Cornwall Facebook group
Partners of People with Parkinson’s Facebook group
Research Interest and Involvement
Although our primary purpose is to support the Parkinson’s community, both Branches actively support the research effort. Looking across the two counties, both the University Hospitals and the Royal Cornwall Hospitals Foundation NHS Trusts are active in Parkinson’s research projects, as are the University of Plymouth and Marjohn University.
The Peninsula Parkinson’s Research Interest Group (PenPRIG) is an initiative to encourage the development of local research work and attract the Parkinson’s community to involve yourselves in research.
